When I’m feeling especially masochistic I watch this guy’s videos:
The good news is that I’ve been able to get small bites of certain foods to go down orally and stay down—at least initially. I’m learning my limits. Liquids are still a problem, although I did manage to get through half a large iced vanilla latte the other day. (Don’t ask me how. Maybe it was sheer willpower?) But it’s definitely touch-and-go, and can’t even be counted on to repeat day after day.
My therapist still said this was definitely progress and good news. She turned me on to some recipes that can be prepared, pureed and put through the G-tube as an alternative to the formula I’ve been living on since September. Obviously can’t taste the stuff, but it’s nice to get actual food back into my system.
She also had her supplier send me a huge sample pack of “Real Food,” a prepared, pureed product that I’m trying out.
And more good news is that when I went in for my infusion yesterday, it looks like my weight has finally stabilized; I haven’t lost any more since my last weigh-in. I’d like to keep it where it’s at. It’s nice getting into the same size jeans I wore in my 30s…
‘The Cuban Sandwich’ for The Win! Photos must serve as torture, as well as inspiration for you Mark. How much closer are you to getting to that finish line?
Glad to hear you’re making progress. 🙂